Agenda & Speakers
|Wednesday, November 12, 2014|
|4:00 PM||8:00 PM||Registration/Information|
|4:00 PM||8:00 PM||Poster and Hub Setup|
|6:00 PM||7:00 PM||Tribute Reception – Onsite|
|Thursday, November 13, 2014|
|7:00 AM||5:00 PM||Registration/Information|
|7:30 AM||8:00 AM||Light Breakfast in the Hub and Research Poster Preview|
|8:00 AM||8:30 AM||Critical Mass Welcome and Update|
|8:30 AM||915 AM||Sequencing for the Cure: Genomics Research and Targeted Cancer Treatment with Lukas Wartman, MD|
|9:15 AM||9:45 AM||Research Poster Reception|
|9:45 AM||10:45 AM||Genomics and the AYA Movement with Deborah Morsini, MD, MSW and Barbara Gitlitz, MD|
|10:45 AM||11:45 AM||Interactive Breakouts on Research, Evaluation and Clinical Trials|
Re-envisioning Research and Evaluation: Everyone has a stake in this game
Big Data: Discussing the CM Registry and your Data Collaboration Projects (Attendance for this session has been pre-arranged.)
|11:45 AM||12:45 PM||Networking Lunch – Sit with attendees in your field or make your own mix|
|12:45 PM||2:00 PM||Oral Abstract Presentation and Discussion sessions -See Abstract roster for complete listings|
Research Focus: Lang, Morosini, Sanford, and Barosh
Outreach and Connectivity Focus: Rowe, Fasciano, Hanson, and Lamb
Economics, Resarch and Outreach: Drake, Rosenberg, Goldfarb, Zeitler
|2:00 PM||2:30 PM||In the Hub – Networking and Office hours|
|2:30 PM||4:00 PM||Understanding the Personal Economics of a Diagnosis, Geri Guy, PhD, Sam Watson, MBA, MonicaBryant, Esq.|
|4:00 PM||5:00 PM||Interactive Breakouts on the Economics of Cancer|
Navigating the Haystack: Finding Help on the Journey
Health Care Reform: How it’s actually working
Economic Research In AYA Cancer: Leveraging The Data To Tell Your Story
|5:00 PM||5:15 PM||Thursday Round-up|
|5:15 PM||5:30 PM||Exciting announcement|
|6:30 PM||8:30 PM||Group Networking Event — Offsite|
|Friday, November 14, 2014|
|7:30 AM||8:00 AM||Light Breakfast in the Hub|
|8:00 AM||8:30 AM||Welcome Back and Steven G AYA Cancer Research Fund Awards|
|8:30 AM||9:30 AM||AYA Survivor, Advocate and Activist, Kate Houghton|
|9:30 AM||10:00 AM||Local Spotlight: Denver|
|10:00 AM||11:30 AM||Operating In the Culture to Engage the Millennial Audience with Catie Miller: Plenary and Small GroupDiscussions|
|11:30 AM||12:30 PM||Brunch and Closing|
Barbara Gitlitz, MD of Norris Comprehensive Cancer Center will describe a proof-of-principle study launched in 2014, the Genomics of Young Lung Cancer study. The Addario Lung Cancer Medical Institute, a patient-centric, international research consortium and partner of the Bonnie J. Addario Lung Cancer Foundation, is facilitating this first-of-its-kind, multi-institutional, prospective genomic study in order to identify new genome-defined subtypes of lung cancer and accelerate delivery of more effective targeted therapies.
Monica Fawzy Bryant, Esq.
Cancer Rights Attorney, COO, Triage Cancer
Monica Fawzy Bryant is a cancer rights attorney, speaker, and author, dedicated to improving access to and availability of quality information on cancer survivorship issues. Ms. Bryant is the co-founder and Chief Operating Officer for Triage Cancer a national nonprofit organization connecting people to cancer survivorship information through a national Speakers Bureau, educational events, and online tools. Throughout her career, Ms. Bryant has provided hundreds of educational seminars, written articles and blogs, and appeared on television and radio shows discussing cancer-related legal issues like insurance access and employment rights. Additionally, Ms. Bryant is an Adjunct Law Professor at John Marshall School of Law in Chicago, teaching a class on Cancer Rights.
Barbara J. Gitlitz, MD
Associate Professor of Clinical Medicine Keck School of Medicine of USC
After graduating from the State University of New York Stony Brook campus, Dr. Gitlitz moved out west to California. After completing a fellowship in Hematology Oncology and Translational Investigation at UCLA, she stayed on as an Assistant Professor. Much of her early clinical-translational work involved cancer immunotherapy including one of the first trials of a Dendritic Cell Vaccine for patients with kidney cancer. She then joined the Keck School of Medicine of USC as an Associate Professor to spearhead the USC oncology effort in lung cancer and head and neck cancer. Her most rewarding part of working at USC is being a member of multidisciplinary treatment teams; where medical oncologists, surgeons, radiation oncologists and other specialists can collaborate together on the best, individualized treatment plan for a patient. Her dedicated, compassionate clinical care has been noticed by the community as she has been consistently nominated to the list of Los Angeles Magazine Super Doctors, Pasadena Magazine Top Doctors, and US News Top Doctors. She has received research grants from the American Cancer Society, the National Institute of Health and STOP cancer. Currently she is a member of the Stand Up 2 Cancer Epigenetics Dream Team where she will bring novel trials to treat cancer with combinations of immunotherapy and therapy to awaken important genes that are ‘turned off’ by growing cancers. Dr. Gitlitz has a passion for working with scientists seeking ways to personalize therapy and bring novel drugs (clinical trials) to treat her patients. She believes that each person’s cancer may have unique molecular/genomic features to help guide the best treatment plan. Dr. Gitlitz is an accomplished author and has numerous articles published in peer reviewed cancer journals and she has written numerous book chapters. She has been invited to lecture at cancer conferences all across the United States and internationally.
Founder/CEO, Aunt Bertha; 2014 TED Fellow
Erine has been working on business and technology consulting projects for more than 12 years.
His current company (Aunt Bertha) is making it easy for people to find food, health, housing and education programs. Aunt Bertha’s mission is to make human service program information more accessible to both people and programs.
Prior to founding Aunt Bertha, he directed more than 60 employees within a project responsible for administering the application process for the Texas Health and Human Services Commission. He delivered more than 40 software and operational improvement projects that saved the Texas Health and Human Services Commission (HHSC) more than $5 million dollars per year in operating expenses.
Gery P. Guy Jr., PhD, MPH
Division of Cancer Prevention and Control’s Epidemiology and Applied Research Branch Centers for Disease Control
Gery P. Guy Jr., PhD, MPH, is a health economist in the Division of Cancer Prevention and Control’s Epidemiology and Applied Research Branch. Dr. Guy’s areas of research include health insurance, health care access and utilization, cost of illness, and cost effectiveness. Dr. Guy has led research projects examining the economic burden of skin cancer, indoor tanning in the United States, the economic burden of cancer survivorship, and the costs and cost-effectiveness of colorectal cancer screening.
Dr. Guy received his undergraduate degree from the University of Rochester, a master of public health in health policy from the Rollins School of Public Health at Emory University, and a doctorate in health services research and health policy with a concentration in economics from Emory University. In 2013, he completed a two-year postdoctoral fellowship in Prevention Effectiveness at CDC. He is a recipient of the CDC Steven M. Teutsch Prevention Effectiveness Fellowship Outstanding Fellow Award.
Kate Yglesias Houghton has spent her career working as a Democratic staff member for elected officials and surrogates as well as developing strategic outreach programming and opportunities for Democratic leaders and activists working to engage women voters. Kate is also the President and a founding member of the Congressional Women’s Softball Game, a non-profit charity event which has raised more than $500,000 since 2009 for young women battling breast cancer and features a bi-partisan, bi-cameral team of female Members of Congress against women of the DC press corp. In 2012, Kate was diagnosed with acute myeloid leukemia and was treated at Johns Hopkins University in Baltimore, MD. She is currently cancer-free and maintains a quarterly follow up schedule with her oncologist. Kate, a native of Miami, FL, resides in Washington, DC with her husband Vince. She has a B.A. in Political Science from Florida International University and a M.A. in Public Policy from George Mason University.
Director of Strategy, Noise
As Noise’s Director of Strategy, Catie Miller leads business development and strategy efforts for clients including Unilever, Limited Brands, Viacom, Adidas, Red Bull, and more. Prior to Noise, Catie ran corporate partnerships for charity: water, a NYC-based nonprofit dedicated to bringing clean, safe drinking water to the 800 million people living without it. Between her work at charity: water and with DoSomething.org prior, she’s had the opportunity to work with brands including TOMS, W Hotels, Microsoft, Burberry, L’Oreal, and more, and continues to draw upon this nonprofit experience to help clients create strategic partnerships and brand activations that are both on target and socially-minded.
Deborah Morosini, MD, MSW
Vice President, Clinical Development Foundation Medicine
Dr. Morosini joined Foundation Medicine as vice president of clinical development in 2013, bringing expertise in oncology drug development, clinical genomics and insightful philanthropic activism. Since joining FMI, she has developed a niche specialty in the genomics of Adolescent and young adults (AYA) cancer. Prior to joining Foundation Medicine, Dr. Morosini founded and led the molecular pathology group at Astrazeneca Pharmaceuticals in the division of Oncology Translational Science, where she helped develop and implement biomarker strategies for biomarker driven trials. Prior to Astrazeneca, Dr. Morosini served as director of pathology for Cytomyx (formerly Ardais Corporation), a clinical genomics biotechnology company specializing in the acquisition, evaluation and characterization of ethically acquired human tissue.
Dr. Morosini is a passionate activist and seasoned keynote speaker. Inspired by her late sister and brother in law, Christopher and Dana Reeve, she has devoted her energies to raising awareness and research dollars for cancer research and early detection. She has been a featured spokesperson for numerous non-profit fundraising and government events in oncology and has provided expert commentary for national television and radio broadcasts, including NBC, ABC, CNN and FOX News.
Dr. Morosini earned her BA in English from Mount Holyoke College and her MSW from NYU Graduate School of Social Work. After completing post BA pre-medical studies at Columbia University, she received her MD from Boston University School of Medicine and completed a pathology residency at Boston Medical Center, where she was chief resident. She currently serves on the Board of Directors for the National Comprehensive Cancer Network Foundation, the NPAF Scientific Advisory board, Target Cancer, the NHGRI council, and the Cancer Support Community: Central New Jersey.
Lukas D. Wartman, MD
Assistant Professor of Medicine, Division of Oncology, Section of Stem Cell Biology, The Genome Institute at Washington University
Assistant Professor in the Section of Stem Cell Biology in the Division of Oncology and Assistant Director of the Section of Cancer Genomics at The Genome Institute at Washington University. As a physician-scientist, my lab studies the genomics, epigenetics and biology of leukemia with a focus on using digital sequencing technologies to garner insight into leukemogenesis. I will also continue to devote time to the clinical care of leukemia and stem cell transplant patients. I completed my Oncology fellowship in July 2011 and continued my post-doctoral research training as an Instructor in Medicine in Dr. Timothy Ley’s laboratory until I transitioned to starting my own laboratory in July 2013. I led the study that sequenced the first mouse model of human cancer (a mouse model of Acute Promyelocytic Leukemia developed in the Ley Lab). I am now extending the findings from that study to more than 100 banked tumors from the same model. Currently, my main research focus is studying the role of loss of function mutations in Kdm6a, a histone H3K27 demethylase, in the role of AML and cancer pathogenesis. In addition, I am working to coordinate making clinical next-generation cancer sequencing available to patients at Washington University School of Medicine. In this regard, I am serving as the administrative chair of the new Genomics Tumor Board, which began comprehensive sequencing of selected cancer cases in the spring of 2014.
Samantha Watson, MBA
Founder/CEO, The SAMFund for Young Adult Survivors of Cancer
Samantha Eisenstein Watson is a two-time young adult cancer survivor, advocate, teacher and mom. Diagnosed with Ewing’s Sarcoma at age 21 and with secondary Myelodysplastic Syndrome at age 23, she created The SAMFund for Young Adult Survivors of Cancer in 2003 to support young adults in their financial recovery from cancer. She is proud to be an active member of the cancer community and an advocate for young adult survivors throughout the country, spreading the message that #cancerisntfree and figuring out ways to help young adults overcome their financial challenges so that they can move forward with their lives. Sam holds a BA in Spanish from Brandeis University and an MBA in Nonprofit Management from the Heller School for Social Policy and Management at Brandeis. She currently lives outside of Boston with her husband and two children, Alex (4 1/2) and Emmy (2).