2011 Conference


November 9-11, 2011 / Omni Hotel
Austin, Texas

Wednesday , November 9, 2011

8:00am – 8:00pm
Registration/Information / Balcony Alcove
9:00am – 11:00am
Cancer Center Working Group Session
(reserved for NCI designated Cancer Centers)
Lennie Sender, MD / Deb Friedman, MD
1:00pm – 3:00pm
Awareness Task Force Mini–Workshop / How to
speak with the Media / Amy Berry
1:00pm – 3:00pm
Standards of Care Task Force Breakout – Stu
Siegel, MD / Peter Coccia
3:15pm – 5:15pm
Research Task Force Breakout – Danny
Indelicato, MD
3:15pm – 5:15pm
Membership Task Force Breakout / Brock Yetso,
Craig Lustig. Mini Workshop: R2iSMASH™:
Tapping the Social Web to Reach Potential
Members and Donors / Chris Chodnicki /
Samantha DeVita / Open to all members
5:30pm – 7:30pm
Welcome Reception, Omni Hotel, Atrium,
3:00pm – 10:00pm
Poster Set–up

Thursday , November 10, 2011

7:00am – 6:00pm
Registration/Information / Balcony Alcove
7:00am – 8:00am
Breakfast & Poster Viewing Session / Longhorn
Room, 3rd Floor
8:00am – 9:30am
Opening Plenary Session / Capital Ballroom
/ Welcome: Steering Committee Co–chairs:
Becky Johnson & Stu Kaplan
Key Note Address: Doug Ulman, President
and CEO, LIVESTRONG / Outcomes of the
Feasibility Study
9:30am – 9:45am
9:45am – 10:45am
Special Breakout Sessions / TBD
10:45am – 11:00am
11:00am – 12:00pm
Plenary Session: The Emergence of
Adolescents and Young Adults with Cancer in
Film – Pat Taylor / Michael Lang / Bonnie Lang
12:00pm – 2:00pm
Lunch / Networking / Poster Viewing Session /
Longhorn Room
2:00pm – 3:30pm
Breakout Sessions:
- AYA Oncology: Updates from COG – David
Freyer, MD / Danny Indelicato, MD
- Addressing the Needs of Ethnic and Cultural
Minority Groups: Some ideas for Program
Development – Margo Michaels
- Creating and Repackaging/Repurposing Data:
How to get and create powerful stories using
data – Ruth Rechis, PhD / Pam Marquardt
- Show Me the Money: How to identify, apply
and write a successful programmatic grant –
Jen Mills / Loretta Holland
3:30pm – 3:45pm
3:45pm – 5:15pm
Plenary Session: Face to Face with the Journey:
The personal experience of four young adult
cancer survivors / Capital Ballroom / Moderator:
Peter Shaw.
- Marcia Donzinger / Ovarian Survivor
- Trevor Biggs / Non-Hodgkin
Lymphoma (follicular) Survivor
- Lynn Malec / Breast Cancer Survivor
7:00pm – 10:00pm
Group Dinner Event, Maria-Maria Restaurant
(Optional Event – no charge) A full dinner
buffet will be available with appetizers, main
course and dessert, along with beer, wine and
margaritas… what a way to start the evening!

Friday , November 11, 2011

7:00am – 1:00pm
Registration/Information / Balcony Alcove
7:00am – 8:00am
Breakfast & Poster Viewing Session / Longhorn
8:00am – 9:30am
Plenary Session/ Capital Ballroom / Welcome:
Steering Committee Co–chairs: Becky Johnson
& Stu Kaplan
Insurance Reform: Fertility Preservation for
Cancer Survivors: Brandon Hayes–Lattin
9:30am – 9:45am
9:45am – 11:00am
Oral Presentations of Abstract Submissions
Rotation #1 - Psychosocial / Support Services /
Tools & Methods
11:00am – 11:15am
Switch Rooms
11:15am – 12:30pm
Oral Presentations of Abstract Submissions
Rotation #2 - Psychosocial / Support Services /
Tools & Methods
12:30pm – 1:45pm
Plenary Session / Awards & Boxed Lunch


- Increasing Oncofertility Awareness in the
Clinical Community
- Success Factors in Developing a Survivorship
Clinic for Adolescents & Young Adults
- A Comparison of Thrombosis Rates in
Adolescent and Young Adult (AYA) Versus
Younger Pediatric Oncology Patients
- Utilization of Proton Therapy in Adolescent
Patients: A 2010 Patterns of Care Study
- Recruitment of AYAs on Non-Therapeutic
Research Studies
- Forging a Path for Young Adults with Cancer:
Raising Awareness in a Large Comprehensive
Cancer Center
- Gene expression as a predictor of “young adult
type” breast cancer: a retrospective analysis

- Using Visual Graphing Tools to Explore
Publications and Relationships for AYA
- Impact of Breast Cancer Awareness &
Education on Young Women
- Incidence and Mortality Mapping of Texas AYA
- Increasing Nurses’ Knowledge of Cancer
Survivorship: Assessing the Impact of Online
Continuing Nursing Education (CNE)
- Texas 4000: Empowering Young Adults in the
Fight Against Cancer
- Using the F Word to fight the C word
- One-Stop Shop: Multimedia Resources for
Young Adults Living With Cancer
- Journal of Adolescent and Young Adult
Oncology: development of a new professional
resource for AYA cancer
- Empowering Young Adults to Reduce Cancer -
Stigma in their Communities within Black
Townships of South Africa
- AYAs Perspectives on Electronic Health
Information Exchange

- Coping and psychological distress in young
adults with advanced cancer
- A Comparison of Distress and Supportive Care
Use between Younger and Older Adults with
- Methods for recruitment and retention of AYA
oncology patients in psychosocial research
- Sitting on the sideline – The challenges of
being an AYA Sibling
- The AYA Identity Paradox
- Optimizing Psychosocial Care for Adolescents
and Young Adults (AYA) with Cancer: An Online
Video Series Addressing Topics of Interest for
This Population
- Cancer180, Because when cancer strikes, life
does a 180
- Qualitative study of Hispanic/Latino AYA Cancer
- Quality of Life, Symptoms and Management in
Adolescents with Advanced Cancer
- An Update on Adolescent and Young Adult
Psychosocial Oncology Research Being
Conducted at the IWK Health Centre
- The Physical, Emotional, and Practical
Concerns of Post-Treatment Cancer Survivors
Diagnosed as Adolescents and Young Adults
- When Dying Doesn’t Make Sense: Dying as a
Young Adult
- Adolescent/Young Adult Cancer Survivors’
Experiences of Connectedness with Their
Healthcare Providers

- Breast Cancer Navigation Flowchart: A Tool
Addressing Patient Engagement in Healthcare
- Supportive Care Service Use and Unmet Need
Among Recently-Diagnosed Adolescent and
Young Adult Cancer Patients
- Group Loop™: A Website for Teens Impacted
by Cancer
- Insights: Experiencing Transplant as a Young
- Art and Healing: A Support Program for Young
Adults Coping with Cancer
- YAP@DFCI Connections: Building psychosocial
support through web-based social networking
- Project Onward: An Innovative E-Health
Intervention for Cancer Survivors
- Happilyaftercancer.org: Development of a
Website for AYA Survivors of Childhood Cancer
- iProton: A Novel Support Program for
Adolescents Cancer Patients Utilizing
Apple iPad Technology to Reduce Anxiety in
Adolescents Undergoing Proton Therapy
- Y.E.S. Young Adults Embracing Survivorship
Providing Healing Through Outdoor Adventure
- Oncofertility: Preserving the Future through
Education and Guidance
- Conceiving a Seminar on Fertility: Collaborating
to Address the Family Planning Needs of Young
Adult Cancer Survivors
- Fighting Cancer With Adventure
- Teen Heads-Up Conference for Brain Tumor
- Survivors: Combining Community Service and
Social Skill Development in a Camp
- Implementation of a Multidisciplinary AYA
Program to Address the Unique Needs of the
AYA Cancer Patient
- LIVESTRONG Cancer Navigation Center

Attending Organizations

15-40 Connection
All Children’s Hospital
American Cancer Society
Andre Sobel River of Life
Association of Oncology Social Work
Association of Pediatric Hematology/Oncology Nurse
Baylor University Medical Center
Bennett Cancer Center/Stamford Hospital
Brenda Mehling Cancer Fund
Bright Pink
Camp Mak-A-Dream
Cancer and Careers
Cancer Legal Resource Center
Cancer Support Community
Caporal Assistance Network
Centers for Behavioral & Preventive Medicine
Chai Lifeline
Chasing Rainbows Young Adult Cancer Advocacy
Children’s Brain Tumor Foundation
Children’s Cancer Association
Children’s Cause for Cancer Advocacy
Children’s Hospital L.A.
Children’s Hospital of Eastern Ontario
Children’s Hospital of Pittsburgh
Children’s Memorial Hospital
CHOC Children’s Hospital
Cincinnati Children’s Hospital Oncology
City of Hope
Columbia University Medical Center
Cook Children’s Medical Center
Craig Willinger Fund
Dana Farber Cancer Institute
Desmoid Tumor Research Foundation
Duke University
Fertile Action
First Descents
FORCE: Facing Our Risk of Cancer Empowered
Froedtert Health
Hearst Cancer Resource Center
Hope for Two..The Pregnant with Cancer Network
I’m Too Young For This! Cancer Foundation
Imerman Angels
Inheritance of Hope
IWK Health Centre
Jack & Jill Late Stage Cancer Foundation
James E. Cary Cancer Center
Jen’s Thank You Alliance
Jewish General Hospital
Kapiolani Medical Center for Women and Children
Keep A Breast Foundation
Love Hope Strength Foundation
Lymphoma Research Foundation
MD Anderson Cancer Center
Medical College of WI-Children’s Hospital of WI
Melissa’s Living Legacy Teen Cancer Foundation
Memorial Sloan-Kettering Cancer Center
Michael G. Belz Foundation
MyLifeLine.org Cancer Foundation
National Brain Tumor Society
National Cancer Institute
National Cancer Policy Forum, Institute of Medicin
National Collegiate Cancer Foundation
National Marrow Donor Program
Nationwide Children’s Hospital
Nurse Oncology Education Program
Oncofertility Consortium
Oncology Nursing Society
Oncology Youth Connection
Oregon Health & Science University
OSUCCC-James Cancer Hospital
Pediatric & Young Adult Oncol.; Childrens Oncol Gp
Peter MacCallum Cancer Centre
Pink Ribbons Project
Prepare to Live
Presbyterian Cancer Center
Rise Above It (RAI)
Robert Lurie Cancer Center of Northwestern Univers
Rocky Mountain Cancer Assistance
Roswell Park Cancer Institute
Roy and Patricia Disney Family Cancer Center
Ryan Waldheger Research Memorial (RWRM)
San Luis Obispo Young Survivors
Sarcoma Foundation of America
Seattle Children’s/Fred Hutchinson Cancer Research
Seton Family of Hospitals
Sharp Cancer Institute
Sharsheret: Your Jewish Community Facing BC
Single Jingles
St Jude Children’s Research Hospital
St. John’s Mercy Medical Canter
Steven and Alexandra Cohen Children’s Medical Cent
Susan G. Komen for Cure
Sy’s Fund, Inc.
Tamika & Friends, Inc.
Team Shan Breast Cancer Awareness for Young Women
Teenage Cancer Trust
Testicular Cancer Resource Center
Texas 4000
The Ability Center (formerly Super Gimp)
The AKP Foundation
The Cancer Institute of New Jersey
The Children’s Hospital
The Children’s Hospital of Philadelphia
The Colon Club
The Joan Levy Bisesi Foundation
The Leukemia & Lymphoma Society
The LiveLovely Foundation
The Raymond Wentz Foundation
The SAMFund for Young Adult Survivors of Cancer
The Therapy Space
The University of Kansas Cancer Center
The Warwick Foundation
The We Believe Foundation
The Yellow Umbrella Organization
Tigerlily Foundation
Towson University/ Ulman Cancer Fund
True North Treks
Tulane University School of Medicine
UC Davis Cancer Center
UCLA Healthy Lives After Cancer Program
Ulman Cancer Fund for Young Adults
UNC Lineberger Comprehensive Cancer Center
Univ of Texas Health Sci Ctr at San Antonio
University of Alabama at Birmingham
University of California, Irvine
University of Colorado Denver
University of Florida Proton Therapy Institute
University of Michigan
University of Pennsylvania School of Medicine
University of Virginia Cancer Center
Vanderbilt-Ingram Cancer Center
VCU School of Medicine
Venturing Out Beyond Our Cancer (VOBOC)
Vital Options International
Winship Cancer Institute of Emory University
WWWW Foundation, Inc.
Y-ME National Breast Cancer Organization
You Can Thrive!
Young Adult Cancer Canada
Young Survival Coalition
Young Women’s Breast Cancer Program at Washington
Z Foundation